Author Archives: Kathy

Surgery Jan. 1st

My husband and I had a consultation with Dr. Ahmed on Thursday at his office in Westchester. The stone has moved upward, and is on my left kidney. Drs. all agree it is NOT going anywhere. Too big to pass – just not moving downward.

The stent that was put in back on Oct. 26th has developed inflammation, and is irritating my bladder which is causing much bleeding. Dr.Ahmed will go up with a laser, and break up the stone to where it turns to gravel/sand. Easier to pass. They will take out the old stent-put in a small fiber type stent that will come out three days later.

Dr. Ahmed has said it will be a longer recovery as they go up and poke around a lot. Will be very sore for days. They also do not know what else they may find while up there. We are thankful they are finally taking care of this as I have been in extreme pain for months. We are blessed to have good doctors and I cannot say enough about Little Company of Mary Hospital- Torrance, CA.

ER visit 12/23/2018

I made the decision to go to hospital as I was not doing well. Sharp pains and, just not feeling well. I finally had a cat scan – it showed the 8 MM Kidney stone was up near my kidney now. The stent that was put in back on October 26, 2018 was now covered in inflammation.

I was given Rocephin in the ER as soon as they knew what they were dealing with – which was bacterial. ER doctor was fantastic. My Urologist was out of town for three weeks on vacation. His partner Dr. Ahmed agreed with the ER doc that the stone must come out, and simply will not pass. I am suppose to call Dr. Ahmed tomorrow. The infection must clear up before they go in there.

Dr. Ahmed will do the procedure. I am very frustrated as it is Christmas and I had so much to do. I love to bake for the neighbors/friends but that has been put on hold. Thank goodness for my wonderful husband as I do not know what I would do without him. For better or for worse sure was taken VERY seriously when we got married. We both have come together for each other. I am grateful. Grateful for my friend Shirl who was texting me the entire time I was at hospital. I was by myself as Tom was on duty. It all was ok though. I am a big girl but when you are feeling so bad it’s tough.

Annette Funicello w/ MS

If you do not remember Annette she started out as a Mouseketeer on the original Mickey Mouse Club.

Year ago she developed MS. For some, it goes into remission, and they do fine but for others it can be very hard, and they end up declining. I wanted to share a video her husband Glen Holt did so others could understand just how devastating this disease is or can be. Annette ‘s doctor is interviewed and you will see Annette when the disease had progressed.

Annette disclosed that she had MS in 1992 and would later die in 2013. This video is heart-wrenching to watch BUT it may help others to understand this disease.

A dear friend of mine, Ann lost her only daughter to MS. Kim was diagnosed and within ten years she would be gone. It progressed very fast. Her husband took care of her and I was able to see Kim not too long before she passed away. I have NO regrets seeing her in the condition she was in. It taught me to be a more loving person and although I do not have MS – I deal with RSD and I’ve learned to take one day at a time. Pace myself.

You do not stop caring about people because they are sick. We must all learn to value friendship and care about others.

Trip to Urologist today

This morning I decided I needed to call my urologist’s office. I knew the doctor was out of the office for the next three weeks but I still called. I told the girl who answered about my symptoms etc and they wanted me to come to the Westchester office near LAX. I was going to see Dr. Tomasic ‘s PA, Melissa.

I had to give a urine sample and they decided I had an infection. They also felt it could be that the kidney stone has moved or the stent was irritating. Melissa was great gave me a couple of prescription and told us should things change call them immediately or go straight to Little Company of Mary. She would send a text to my doctor and tell him about our visit. I was to keep my appt with Dr. Tomasic at the Redondo Beach office in mid January.

I am dealing with much discomfort but hope that the stone passes so I do not have to go into the OR to have it removed.

Visit to Little Co. of Mary Hospital

On October 25, 2018 in screaming pain I summoned my husband out of bed.   I was crying and in the worse pain possible.  I told him we need to go to Little Co. of Mary that something is wrong with me.   We got to the hospital and oddly enough it was not packed.  I was taken to Triage with my blood pressure at 200/ 125.  That’s high – too high.   They asked me all sorts of questions and next thing I know – I am being wheeled down for a Cat Scan.

Well to my crazy surprise – I had a 8 MM Kidney stone LODGED in my Ureter.   It would not move.   It was considered in the medical field to be QUITE big..  Er doc had me admitted to Observation Floor.  Finally they were shooting me up with medication that worked for the pain.   On Friday, a Urologist on call came to see me, and I liked him immediately.  He decided to take me to surgery that night at 6PM sharp to put a stent in me.  This was to help with urine flow, and that horrible pain.   They did not want to go in and break up the stone because of it’s location and the fact that it was lodged.  It could damage some organs.

Saturday afternoon I was discharged.  I was happy to be going home.  I see Dr. Tomasic this Friday , Nov. 9th, the urologist.  Hopefully he will have more answers.   Truth be told, I have NOT felt well for several months.  Very tired and now I know why.   I am diabetic and that was another reason for admitting me.  All of it was too dangerous.

Night from Hell

Last night I ended up with my head in the toilet.   Ok, so I am being over dramatic.   Truth is, for some reason I was very ill.   Everything inside of me came up.  My left side hurt like a dickens.   I called Little Co. of Mary ER but they were swamped.  I passed.

I ended up taking a Trazodone which relaxed me and I fell to sleep.  I have been under a lot of stress recently.  My grandson passed away in March 2018 and I thought I was just dealing from all of that or reacting .   I have been fighting for years with my health.

I do need to find out what happened last night and I hope it was only stress.   Why on earth would my left side hurt so much?   This too shall pass.  Quick UPDATE:  Well it did not pass as I ended up in the hospital as you will learn…

Steve Rummler Foundation

I had sat down and wrote to this foundation.  I was very kind and considerate.  I explained to them that I had been on Fentanyl patch since 2005 (50MCG) and have not heard from them.  I guess they were not interested in my story.  I’m not addicted to the medication and chose not to go to a higher dose.

I also shared with them about my brother John who had been addicted to Meth for years and then got addicted to Vicodin.  Again, they were not interested.

Rummler’s and Mendell families have lost their loved ones to overdoses.  I feel so sorry for them because I lost my brother John who I will write about soon.  I understand the loss.   Having said this- there is a group of people out there who DO NOT ABUSE their opioid medications.   We are the collateral damage in this war on opioids.

Thank God for Greg Gutfeld of the FIVE on Fox.  He has come out in support of us.  He has also interviewed JOHN HEUBUSCH, Executive Director of the Ronald Reagan Presidential Foundation who suffers from RSD.

Again, people who overdose turn to other drugs and do often mix alcohol with their meds.  They turn to harder drugs.  It’s not their fault as they have an addiction but please do not take it out on us who do not abuse!

 

War on Chronic Pain Patients

I find it terribly sad that there is a war going on out there, and chronic pain patients seem to be the collateral damage.

As this fight continues, more and more people are committing suicide as they can no longer stand their pain.  Are these people being tapered down on their medication?  Just how far has the DEA gone or CDC?

It seems doctors cannot be trusted all of a sudden?  Horse manure.  I had a wonderful Internist who prescribed my medication  but the DEA was getting too involved and my doctor got scared.  I do not blame her.  I have utmost respect for physicians- they go to school for years to become a doctor.  All of a sudden they do not know what they are doing?

For me, it worked out great as I was referred to a wonderful pain management doctor but for many others – they are not so lucky.  They are turning to suicide.  Just had another one in Redondo Beach.  This man was hurt in an construction accident, and had been on leave for over a year due to extreme pain.   I have no idea if he was tapered down or doctor refused to give him a higher dose.  Clearly the man was in pain and suffering. He killed his wife- son and himself.  So so sad.    This could have been avoided possibly.

We had a law enforcement officer in Montana commit suicide.  She was a patient of Dr. Forest Tennant whose office was ripped apart by the DEA.   Suicides are happening more frequently now.  We NEED to stop this and take a good hard look at what we are doing to the very people who are legit – in chronic pain.

This is NO laughing matter.  I am begging the main stream media to look into this and help us out here.  We need someone on our side.  We have been caught in the middle, in this War on Opioids.    After reading the story about the Waz family, it literally broke my heart.  It could have been avoided.  Someone dropped the ball here.

Advocacy Work

We in the Chronic Illness/Pain community need Pres. Donald Trump to sit down with us.  We need guidance today as we are losing patients to suicide due to medications being taken away or tapered way down.

The people I know via Twitter are a great group of people working hard to change how the public view us.  We are NOT drug addicts.  We take our medications as prescribed and do not abuse.  I use Twitter because it commands a lot of attention and we do know publications are hearing us as they have written about us and the opioid crisis.

The DEA cannot keep using these Nazi like tactics – storming in to doctors offices and ransacking them.  Dr. Forest Tennant is one such doctor in Covina, CA.  Please read this article.  What happened to Dr. Tennant is happening to a lot of doctors – GOOD doctors.  Not your pill mill docs.

Thankfully we have a good following of therapist, doctors  on Twitter who are on our side and doing what they can.  Thomas Klein MD actually went to Washington DC on our behalf.   These are the people we need – doctors.  Where are all the doctors?  I will tell you many have been treated terribly by the DEA.    What happened to doctor-patient privilege?   What happened to doctors knowing their patients?   My own doctor was upset over the DEA.  She told me in May of 2017 she was referring me to a pain mgmt doctor in Torrance.  That was fine with me but it wasn’t because I was a bad patient or abusing.  She knew I would be taken care of by a wonderful physician who specialized in chronic pain.   I cannot say enough about Dr. Bradley.  His bio is one that I found so impressive.  He worked with wounded soldiers.  Also worked at Walter Reed.  That’s pretty darn impressive.

This is my life now.  I cannot get down and dirty in the trenches but I can still write and make my voice be heard.   RSD is very painful – so many have no idea.  They don’t understand.   I will sit down when not too tired and write to Pres. Trump.  I can at least try.  We’ll see.

 

Deep pain today.

Got up this morning and I was in severe pain.  I was due to change my pain patch tomorrow morning.  Decided to take some break through pain medication that my pain mgmt doctor gave to me back in November 2017.  I try not to take it but sometimes I just have to.

My hands were hurting so bad and I fear my carpal tunnel is getting worse as well as Osteoarthritis in hands.   Legs were burning.  It just was not a good day today at all.  I think my body was also reacting still to what has been going on since Christopher passed away.  Day of services I was on my feet for many hours.  I was in extreme pain that day but I kept it to myself and got through the day.  It was difficult but I did it.

I think I will talk with Tom and see what he thinks about me going in to see about my carpal tunnel.  Probably time.