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October 1, 2016 – MRA Angiography

Today I received in the mail and response from my insurance company about a test that my Vascular and Gastroenterologist doctor  want me to have.  When I had an endoscopy recently certain things popped up that Dr. Lee felt needed to be addressed.  He knew I already had issues with my smaller veins but my new Podiatrist did a doppler test on my right foot which showed only a faint pulse.  That of course is not good.

I never throw up yet this has been happening to me as well as being nauseated.   My right leg has been hurting a lot more as well.  Something is going on.  My vascular doctor put in for the MRA and they approved it.  So happy about that.  Maybe we can get to the bottom?

Our mother – and all her siblings suffered from Vascular disease.  Mom, had to have both legs amputated due to vascular disease. She passed away at the age of 66.    I have developed bad varicose veins which our mother had as well as venous insufficiency.

I am just so glad my doctors are communicating.  I have good doctors and feel blessed.

 

Vascular surgeon today…

Had appt today with my vascular doctor.   He scheduled me for an ultrasound on both legs.  We’ll see what is going on.  Never ending…just never ends.   Did a rotor rooter on both legs back a few years ago but right leg is bothering me more so need to check it out.

 

Results of my procedure

Today (Sept. 15, 2016)  I met with Dr. Lee, my Gastroenterologist doctor who I happen to like and respect.  Dr. Lee is young-and very sharp-on the ball for sure.   His compassion is superb.  We had to go over my test results from Endoscopy and Colonoscopy.   

Nothing life threatening or cancerous thank goodness.   Two polyps were biopsied and benign but pre-cancerous (colon).    My stomach is a different story.   Stomach lining was pretty irritated-red.  Took a biopsy which turned out to be benign.  Polyp was found in stomach…

Because I have venous insufficiency, Dr Lee feels I should think about having an Abdominal MRA to assess for vascular insufficiency given symptom of leg claudication.

  • MRA: magnetic resonance angiography (MRA) is an MRI exam of the blood vessels

Dr. Lee is concerned because if there is claudication it can create pain in my stomach which I have been having, and I’ve also had bouts of vomiting.   I am calling my vascular doc tomorrow morning – hoping to get in to see him as soon as possible.   Between my stomach and leg pain, it’s been really tough.  I feel good that I have a good team of doctors who are taking good care of me and know what it going on.  Unfortunately, just have some bad health issues.

To be honest, I dread eating.  I don’t like that feeling in my stomach.  I have lost 10 lbs without really trying.  I know I need to eat as I have diabetes but boy, when your stomach is uncomfortable it’s hard to eat.

Procedure on Aug. 17, 2016

Well, that’s over.  I had to go in for a Colonoscopy and Endoscopy.  Got there at the surgi center at 10:30am and front desk was so nice.  Just a very nice gal named Cheryl.   My name was called, and I went back with nurse.  They were taking vitals and all that good stuff.   Next thing I know I am being wheeled into a room – some type of mouthpiece was jammed into my mouth (ouch, thanks guys).  Needle inserted into line – starting counting and boom bang I was asleep.  After about 45 mins I woke up in recovery.  After 15 mins, I  told them I could dress myself, and wanted to go home.  They wheeled me out to the car, and dr told me to make an appt.  Got home – called the office and got an appointment for Sept. 15th which is when I will get all results.  I do not anticipate any problems.  They did take biopsies from my stomach and I had polyps removed.  Had something been wrong I would have learned earlier.

August 11, 2016

Yesterday was my 3 month follow up appt with my physician.   Good news is I lost 5 lbs – blood pressure is doing great.  Oxygen was at 100%.   Now we hope my blood work comes back good.  🙂

I talked to my doctor about my foot pain which is more then likely the RSD.  Crushing deep pain in both feet.  She wants me to see the podiatrist in her group so they are setting that up for me.  I am sure if this new doctor feels I need to have new tests done, they will make sure I get them.

Last night for the first time in a very long long time I actually dealt with vomiting.  I got scared because I could feel me getting flushed and of course I was here by myself.  No chest pains so I knew it was not a heart attack.   The problem is, and I am pretty sure about this.  I was diagnosed with a Hiatal Hernia years ago. After I had my little bout – I jumped on the computer and vomiting does/can happen with a Hiatal Hernia.   I have had problems swallowing and I am going in next week for an Endoscopy/Colonoscopy.  My Gastro doc is well aware of my swallowing issues and I hope there is no blockage of some sort.  Yea, having some anxiety but I think that is normal.

As always, I have to insert some humor and I am very blunt…As I was doing the vomiting dance – I was also letting loose on other end well, what I mean I could not stop from peeing all over myself.  Oye Vey.  Yep, let the world know Kathy.   LOL   Afterwards, I had to laugh what else could I do?   That’s life…the old bladder just could not be controlled.  Ha!

So, next Wednesday I go to Endo Center in Torrance and have both tests.  Hoping and praying all is ok.

Bad day today…

It felt like my foot was being crushed.  I have these pains off and on in my right foot.  When they hit – they hit hard.  I just starting crying and my poor dog came over to me.  Max is so sweet.  My husband comes over to massage my foot hoping the pain will go away.   They know!!  🙂

I have terrible bursitis in my right hip and I also tweaked it while trying to garden the other day.  I forget I am not superwoman.   I hate having this RSD.  It is miserable stuff for sure.  I wish I did not have to deal with all this crappy stuff.   I’m use to it – well I guess I am.   I certainly do not dwell on it but when I get those awful pains, it’s just a real reminder for me.   My life is so different today.

 

Stress

My grandson has been in the hospital since May 26, 2016.  He has been on life support due to his lungs as well as infections.   I have not been to hospital in awhile but I do read the updates on Christopher.   It’s actually not that good of an idea for me to be up there since I carry a staph.  I have been hospitalized for several days due to Cellulitis in the past.

My heart hurts for Christopher and for my daughter.  I hate it that Chris is going through all of this.  Hate it that Tara is going through even more heartache.

I stress out from afar.  Believe me when I say I do worry endlessly.  Stress causes more problems for me but this is my grandson who I love very much.  He has been our guiding light.

Stress causes people with chronic illnesses more problems and that is for sure.  It intensifies our already pain.  Very tough.

July 31, 2016

Has been awhile since I have been in here.   Nothing has really changed.  I take one day at a time and often have to rest up.   The other day I was dealing with a lot of leg pain which is not really unusual for me.  It was just a bit more intense and of course I had that burning pain.  It’s all related to the RSD I am sure.

Not sure I shared this but I did join a small group that has monthly meetings out in La Habra.  Great group of gals dealing with a lot of the same issues that I deal with.   It’s nice to share our stories and to be free to vent to each other.

Being chronically ill is not fun at all.   You put on a brave face and try to get through the day.   People think you are not ill because you have your hair done – a little make up on and so the story goes.  Reality is, we are just coping.   I cannot do a lot in one day anymore.  I might get a few things done in the morning and then I collapse on the couch.   It sucks.  I am so thankful for my husband who understands and is patient with me.  He helps when he is home if I am having a bad day on that day.  Could not ask for a better husband and I am so thankful for him.

May 25, 2016

I haven’t been in to give any updates lately.  I did get a good report about Diabetes.  I have brought my numbers down and A1C looks good but could be better.

Saw my ophthalmologist  and my cornea disease has not gotten any worse.  I’ve had terrible issues with dry eyes so it’s back to the Restasis.   Nothing can be done about floaters.

Been dealing with terrible pains in stomach.  Making the appointment tomorrow to have two tests that they want to do.  Will be glad to get that over with.

Dealing with memory issues.  Sometimes I get the days confused and I can’t do recall.  Very frustrating.

Just take one day at time…I try to persevere and not give up.

Melanoma re-check

Tomorrow is my 6 month check up for Melanoma.  Hoping nothing has popped up.  I am at high risk due to being diagnosed with A Nevus about a year ago.  I’m pre-cancerous…  I had a biopsy and it was discovered.  Just means I am at high risk of getting/having Melanoma.

An issue that needs to be out there and is very important – the need to be open about medical issues within families that are genetic.  Really important to be open with your family members.